Two researchers at Stanford’s Movement Disorders Center are recruiting participants for three research studies who have PDD (rather than DLB), PSP, MSA, or CBD, or are healthy controls.
Dr. Kathleen Poston mentioned both of her studies are the October 2012 atypical parkinsonism symposium during the MSA break-out session, so that may not be new info to those who attended her session. (And I know several in our group – both those with MSA and their healthy caregivers – have participated. Thank you!)
You do NOT have to be a Stanford patient or Stanford family to
participate. Details of the three studies follow.
Robin
—————————————————————————
LOOKING FOR THOSE PDD (PARKINSON’S DISEASE DEMENTIA) AND HEALTHY CONTROLS
Development of multimodal imaging biomarkers for cognitive dysfunction in Parkinson’s disease
Principal Investigator: Kathleen Poston, MD, MS. This study is
funded by the Michael J. Fox Foundation for Parkinson’s Research.
Contact Info: Sophie YorkWilliams, (650) 774-8688
We are recruiting:
1: Any persons with a diagnosis of Parkinson’s disease with all levels of memory ability.
2. Any healthy persons between the age of 45-95, who do not have PD, memory problems, or any other neurological disorder.
Study participants will receive at no cost: brain imaging (MRI), a memory evaluation, a clinical evaluation, and genetic testing.
The purpose of this study: To better understand brain networks and biological markers associated with memory changes in Parkinson’s disease, and to find ways of detecting these changes before memory problems develop.
LOOKING FOR THOSE WITH MSA, PSP, OR CBD
Early Differential Diagnosis of Parkinsonism with Metabolic Imaging and Pattern Analysis
Principal Investigator: Kathleen Poston, MD, MS. This study is
funded by the NIH.
Contact Info: Hadar Keren-Gille, (650) 724-4131
We are recruiting:
1: People with an established clinical diagnosis of PD, MSA, PSP, or CBD
2: Any person with a parkinsonian diagnosis within the last 2 years, who is not on any levodopa (sinemet) or dopamine agonists
(ropinirole/Requipe or pramipexole/Mirapex). Rasagiline (Azilect) or selegiline are OK.
3. Any person with REM Sleep Behavior Disorder (RBD), but no other neurological diagnosis.
Study participants will receive at no cost: brain imaging (MRI and PET), a memory evaluation, and a clinical evaluation.
The purpose of this study: To develop imaging markers that will more accurately diagnose parkinsonian disorders, such as Parkinson’s disease, Multiple System Atrophy, Progressive Supranuclear Palsy, and Corticobasal Degeneration.
LOOKING FOR THOSE WITH MSA OR PSP
Fine, limb and axial motor control study of people with MSA and PSP
Principal Investigator: Helen Bronte-Stewart, MD, MSE
Contact Info: Lauren A. Shreve, (650) 855-4656
We are recruiting:
1. People with diagnosed MSA-P or -C and PSP, who can stand
unassisted in the off medication state.
2. Healthy age-matched (older) control subjects.
Purpose: We plan to compare fine and large motor kinematics with those from people with PD.