Support Groups
There are no support groups like Brain Support Network! However, find a group near you:
- LBD: Visit LBDA. Many groups are for caregivers only. Some groups welcome those with Alzheimer’s or other dementias.
- PSP: Visit CurePSP. Many of these groups welcome CBD and MSA families – call the group leader to find out.
- MSA: Visit Mission MSA. Many of these groups welcome PSP and CBD families – call the group leader to find out.
- FTD: Visit The AFTD. Some of these groups welcome PSP and CBD caregivers – call the group leader to find out.
Some groups are for caregivers only while other groups are for anyone coping with a diagnosis.
Support Groups for Other Disorders
If you don’t live in an area where there is a local support group, consider forming a new group or joining a…
- Local Parkinson’s support group. Visit APDA.
- Local Alzheimer’s support group. Visit the Alzheimer’s Association. (Note: Their website is cumbersome.)
- Local caregivers support group. You might be able to find one by contacting your local senior center.
National Support Resources
Some of the national organizations offer tollfree support phone numbers, such as:
- The Association for Frontotemporal Degeneration (AFTD)
HelpLine 866-507-7222 - Lewy Body Dementia Association
Caregiver Link 800-539-9767 - Lewy Body Dementia Resource Center
Live Helpline 833-LBD-LINE (answered 8am to 8pm ET, daily) - Mission MSA
Patient Support Hotline 866-737-5999