Registration is now open for the Multiple System Atrophy Conference! The conference is co-hosted by the MSA Coalition and Stanford University. Brain Support Network will be exhibiting, providing volunteers, and speaking on the topic of brain donation.
When:
Friday, September 28th, 10am-9pm
Saturday, September 29th, 8:30am-5pm
Where:
Hyatt SFO (in Burlingame, just off Highway 101)
Cost:
Free
Below, I’ve copied the agenda that the Coalition posted to its website. Friday’s talks will focus on practical information for living with MSA, support services, and therapies. There’s a reception and dinner on Friday.
And Saturday’s talks will feature Stanford’s Kathleen Poston, MD,
movement disorders specialist, and Mitchell Miglis, MD, autonomic
disorders specialist. Other physicians from Stanford and various Bay
Area clinics will address topics of sleep, urology, bowel dysfunction,
etc. Researchers from around the US will give updates on the latest
MSA research.
The agenda doesn’t say but I believe registration opens around 9am on
Friday. The conference runs from 10am to 9pm on Friday. Registration
opens at 8am on Saturday. The conference runs from 8:30am to 5pm on
Saturday.
Register here
I don’t see a deadline for registration but I would think it’s several days before September 28th.
The Hyatt Reservations number is 800-233-1234. The MSA Coalition’s room rate is $216/night. A limited number of ADA rooms are available.
Robin
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You can find the tentative conference agenda here:
(scroll down about half way)
Friday, September 28, 2018
[We are assuming registration begins around 9 a.m.]10 a.m. – 10:15 a.m. Welcome by Stanford University Hosts and MSA
Coalition Board Chair
10:15 a.m. -11:00 a.m. Overview – MSA & Research 101 – Dr. Kathleen Poston
11:00 a.m. – 12:00 p.m. Support Group Meetings
12:00 p.m. – 1:00 p.m. Lunch
1:00 p.m. – 4:00 p.m. Afternoon Workshop Sessions
There will be multiple time slots with two or three sessions per time
slot and selected sessions will be repeated. Topics will ranch from
practical information for living with MSA, support services,
therapeutic approaches to address symptoms, and research information
and participation opportunities.
5:15 p.m. – 6:00 p.m. Reception
6:00 – 9:00 p.m. Dinner Program
Saturday, September 29, 2018
8:00 a.m. – 8:30 a.m. Registration & Breakfast
8:30 a.m. – 8:45 a.m. Welcome by Stanford University Hosts and MSA
Coalition Board Chair
8:45 a.m. – 9:45 a.m. Symptoms & Treatment Management
Movement Disorder Issues – Dr. Kathleen Poston
Autonomic Issues – Dr. Safwan Jaradeh and Dr. Mitchell Miglis
Sleep Issues- Dr. Mitchell Miglis and Dr. Michelle Cao
9:45 a.m. – 10:30 a.m. Medical Q & A
10:30 a.m. – 10:45 a.m. Break/Activity
10:45 a.m. – 11:45 a.m. Interdisciplinary Panel – Dr. Kathleen Poston
will facilitate a panel discussion among medical specialists in areas
such as urology, gastroenterology, and cardiology with specific
respect to MSA.
11:45 a.m. – 12:15 p.m. Panel Q & A
12:15 p.m. – 1:30 p.m. Lunch & Exhibits
1:30 p.m. – 3:00 p.m. MSA Research
Natural History Study & Update from 6th International MSA Congress
-Dr. Mitchell Miglis & Dr. Lucy Norcliffe-Kaufmann
Clinical Trials & Relevant Studies– Dr. Daniel Claassen
Research Highlights & Future Directions – Dr. Vik Khurana
3:00 p.m. – 3:15 p.m. Break/Activity
3:15 p.m. – 3:45 p.m. Research Q & A
3:45 p.m. – 4:00 p.m. Closing Remarks
4:00 p.m. – 5:00 p.m. Support Group Meetings