Hope Hospice has a terrific resource list on advance planning and end of life issues. It’s divided into three sections:
* online resources for patients and families
* online resources for healthcare professional
* suggested books
I’ve copied it below.
Robin
——————–
www.hopehospice.com/resources.
Resources for Patients and their Families
Caring Connections
http://www.caringinfo.org
(provides Advance Health Directive forms)
Coda Alliance
http://www.codaalliance.org
California Coalition for Compassionate Care
[Editor’s Note: this is now at coalitionccc.org]
Completing A Life
http://www.completingalife.msu
Family Caregiver Alliance
http://www.caregiver.org
‘The Five Wishes’
http://www.agingwithdignity.or
Hospice Foundation of America
http://www.hospicefoundation.o
Legacies
http://www.legacies.ca
New Lifestyles
http://www.NewLifeStyles.com
Free books that list local skilled nursing facilities, Board and Care homes and Assisted Living
Get Palliative Care
http://www.getpalliativecare.o
National Family Caregivers Association
http://www.nfcacares.org
Physician Orders for Life-Sustaining Treatment (POLST)
http://www.caPOLST.org
Resources for Healthcare Professionals
Academy of Hospice and Palliative Medicine
http://www.aahpm.org
American Hospice Association
http://www.americanhospice.org
Caring Connections
http://www.caringinfo.org
Certificate Program for End-of-Life Care
http://www.naropa.edu/
contemplativecare
End of Life/Palliative Education Resource Center
http://www.eperc.mcw.edu
The EPEC Project (Education in Palliative and End-of-Life Care)
http://www.epec.net
Hospice Foundation of America
http://www.hospicefoundation.o
Hospice and Palliative Nurses Association
http://www.hpna.org
National Hospice and Palliative Care Association
http://www.nhpco.org
Physician Orders for Life-Sustaining Treatment (POLST)
http://www.caPOLST.org
Suggested Reading
The 36 Hour Day (A Family Guide for the Care of People with Alzheimer’s/Dementia)
Nancy L. Mace and Peter V. Rabins
All Kinds of Love: Experiencing Hospice
Carolyn Jaffe and Carol H. Ehrlich
An Ocean of Time: Alzheimer’s Tales of Hope and Forgetting
Patrick Mathiasen, MD
By No Means: The Choice to Forgo Life-Sustaining Food and Water
Joanne Lynn (editor)
Caring in Remembered Ways: The Fruit of Seeing Deeply
Maggie Steincrohn Davis
Choices at the End of Life: Finding Out What your Parents Want Before It’s Too Late
Linda Norlander,RN, MS and Kerstin McSteen, RN, MS
Dying At Home: A Family Guide for Caregiving
Andrea Sankar
Dying Well: The Prospect of Growth at the End of Life
Ira Byock, MD
Dying with Dignity: A Plea for Personal Responsibility
Hans Kung and Walter Jens
Facing Death and Finding Hope: A Guide for the Emotional and Spiritual Care of the Dying
Christine Longaker
Final Gifts: Understanding the Special Awareness, Needs, and Communications of the Dying
Maggie Callanan and Patricia Kelly
The Four Stages of Hope: Using the Power of Hope to Cope With Dying
Cathleen Fanslow-Brunjes, MA, RN
Helping Grieving People: When Tears Are Not Enough: A Handbook for Care Providers
Shep J. Jeffreys, EdD.
I’m Here To Help: A Guide for Caregivers, Hospice Workers, and Volunteers
Catherine Ray
On Death and Dying
Elisabeth K bler-Ross, MD
Share the Care: How to Organize a Group to Care for Someone Who Is Seriously Ill
Cappy Capossela, Sheila Warnock and Sukie