Progressive Supranuclear Palsy (PSP) is a neurodegenerative disease that can mimic Parkinson’s, but PSP is a distinct diagnosis with its own features and treatments.
Join PMD Alliance to learn from an expert and delve into the symptoms, diagnosis process, and complications of PSP, as well as current treatment options and ones that may be available soon.
Brain Support Network hosted UCSF neurologist Adam Boxer, MD, PhD for a webinar on the latest research into progressive supranuclear palsy (PSP) and corticobasal syndrome (CBS). (CBS is also referred to as corticobasal degeneration, CBD.) Dr. Boxer discussed past clinical trials as well as research on tau biomarkers and tau imaging. He also gave an overview of research on the horizon for both PSP and CBS, and answered many audience questions during the one-hour event.
Here are some excerpts from a “Washington Post” article about Rep. Jennifer Wexton, who has progressive supranuclear palsy (PSP).
Excerpt:
It seemed like the simplest of things — the sound of her own voice. But Rep. Jennifer Wexton (D-Va.) “cried happy tears” recently when she typed out some words and heard them read aloud by an artificial intelligence-generated version of the speaking voice she has all but lost to a degenerative medical condition. … Wexton made headlines this year by using a robotic-sounding speech application to deliver remarks on the House floor. It was a widely hailed display of resilient spirit, but the app didn’t sound like her.
While this post and infographic are from the PSP Association (pspassociation.org.uk), the tips about managing caregiver stress apply to all caregivers. As the PSP Association (PSPA) is based in the UK, some of the terminology used is unique to the UK! (Example – in the US, we use the term “caregivers,” while “carers” is used in the UK.)
From the PSP Association:
Caring for someone can be rewarding as well as tiring, putting a lot of demand on your physical and emotional energy.
We came across a short book review about “Hard Days: My Life with a Neurodegenerative Disease,” by Dr. Branko Lugovic. Dr. Lugovic, a scientist, has progressive supranuclear palsy (PSP). Looks like worthwhile reading.