Five Tips from Jon and His Father

Father and sonWe saw these “five tips” on an online community for those coping with Multiple System Atrophy (MSA).  The tips are about staying active, resting, scheduling activities with intent, staying positive, and having the caregiver research “all the bad things that can happen” so that the person with a diagnosis can focus on positive things.  These tips may be of interest to everyone with an atypical parkinsonism disorder.   The author is Jon, writing on behalf of his father, diagnosed with MSA in 2023.  They kindly gave permission to share.

Continue reading

“Tips and Tricks” from Susan

We saw these “tips and tricks” on an online community for those coping with Multiple System Atrophy (MSA).  The tips are about sitting down, using plastic bowls and a cookie sheet, using a lanyard, toileting, prism glasses, leak-proof underwear, and more.  These tips may be of interest to everyone with an atypical parkinsonism disorder.   The author is Susan, who has an MSA-C diagnosis.  She kindly gave permission to share.  At the end, she shares this message:  “I often am asked how I stay so positive, and my response is always ‘It’s one thing I can control’.”

Continue reading

Exploring the Environmental Link to Multiple System Atrophy: A UCLA Study

Past research conducted in California has linked environmental factors to an increased risk of neurological diseases. However, the mystery deepens with Multiple System Atrophy, where few studies have investigated its risk factors. At UCLA, a study is underway aiming to understand different factors in the environment that may contribute to the development of MSA.

Continue reading