Category Archives: Living with a Neurological Condition

Recently, Sacramento-based support group member Maureen Anderson sent me this interesting article in the Washington Post about calling 911.  The author reviews what help people will and will not receive when an EMIT arrives on the scene.

See:

www.washingtonpost.com/news/to-your-health/wp/2014/03/18/what-to-expect-when-you-call-an-ambulance/

What to expect when you call an ambulance
Washington Post
By Amy Orndorff
March 18, 2014

The author has a useful list of what the public can do to help EMTs, including:

1. Put BIG numbers on your house and make sure they are well lit at night.
2. Know where you are. … Just knowing major intersections near you makes a big difference in finding you.
3. Write or type the names of your medications, the conditions for which you take them and the dosages. Put this information someplace easy to find, such as on the fridge or in your wallet. Writing down a list of allergies helps, too.
4. Hide a key outside. If you have a medical emergency — like a bad fall down the steps — and can’t open the door for us, we will have to knock it down. If you have a key hidden, you can tell the dispatcher, and we’ll know where to look.

Robin

Though the introductory part of this post uses the word “caregiver” a lot, the rest of this post applies to us all, whether we are caregivers, care recipients, or not actively giving or receiving care.

Many years ago, Janet Edmunson visited the Bay Area.  Our local support group organized several events for her to speak about her book “Finding Meaning with Charles.”  The book is centered around “caregiver affirmations.”  Her husband Charles was diagnosed during life with PSP, and with CBD upon brain donation.  These “affirmations” helped her focus on the positive in her caregiving journey.  We have many copies of this book in our local support group’s lending library; many of us recommend it.

On Janet’s website, affirmyourself.com, you can sign up for a “weekly affirmation” email.  Examples:  “Hold on to your passions, because they are the essence of who you are.”  “Surround yourself with positive people and messages.”

Over the last couple of years, she’s been conducting webinars on some of the topics that interest her the most.  In 2013, she presented a five part series called “Affirm Yourself for Caregiving Challenges.”

Today, Janet organized a webinar on “Navigating Negativity,” where psychologist Amy Wood spoke about dealing with negative people in our lives.  I’ve copied my notes from the webinar below.  I think it’s worth reading Dr. Wood’s “four steps to navigating negativity” as well as her “four examples of solution-focused questions” to ask yourself or a negative person.  The webinar was recorded, and the recording will be available on Janet’s website soon.

Robin

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“Navigating Negativity”
A webinar  (being recorded)
Guest presenter – Amy Wood, Psy.D. ([email protected])
Organizer – Janet Edmunson, affirmyourself.com
Thursday, February 6, 2014

Decide that “no negative thoughts are allowed.”

Trying to be happy takes a lot of work.

Our goal is healthy, realistic optimism.  An optimist is between “positivity” (“it will happen”) and “negativity” (“it will never happen”).  Realistic optimism = “it could happen.”

True optimist looks at both extremes and says “there are downsides and upsides.”  “I’m going to find a solution.”  “I’m going to make the best of this.”

Optimism is a solutions-focused approach.

How can you convert negative people?

Four steps to navigating negativity:  (cute graphic)

1- See the full picture.  Don’t immediately make an assumption like “this is all great” or “this is all terrible.”  Try to listen to a negativist’s point of view by asking “why do you think this will never work?”  Don’t just dismiss the negativist.

2- Find value in cynicism.  Negativists became more negative over time because no one is listening to them.  Try to find some wisdom in what the negativist says.

3- Offer a chair.

4- Switch gears when enough is enough.

Don’t ask a negative person general questions, like “Tell me what’s wrong.”  You must ask specific questions.

Extract positivity with solution-focused questions!  This is the key in turning around negativity.  Four examples of solution-focused questions:  (to ask others or yourself)

1- “What’s the most positive thing you can see in this situation?”

Lots of times caregivers get stuck in what’s been lost.  It’s important to redirect to positivity.  Example:  “One positive thing is that we get to spend lots more time together.”

2- “In a perfect world, if you had unlimited resources and power, what would you do to solve this problem?”

3- “What personal skill can you apply to make things better?”

4- “What do you hope to accomplish with this conversation?”  “What’s the point you are trying to get across?”  (Maybe there isn’t a point.  Can the negativist see that the conversation is a waste of time?)

“People inspire you, or they drain you — pick them wisely”  (Hans F. Hansen)  Consider ending friendship or changing jobs in order to eliminate negativists from your life.

You can’t choose your family/co-workers/neighbors/community members, but you can ignore their phone calls!

“Become a possibilitarian.  No matter how dark things seem to be or actually are, raise your sights and see possibilities — always see them, for they are always there.”  (Norman Vincent Peale)

Q&A

Q:  Can the toxic person be a caregiver?
A by Amy:  Yes, this is hard if the care recipient is relying on the toxic person to give care.  Principles are the same.  Set limits.

Q:  Mother only vents with me.
A:  Re-direct your mother.  Set limits. “I love to talk with you about all kinds of things, but I’m not here to only listen to you vent.”

Q:  My depressed spouse drains me.
A:  Set limits.  “I’m here for you.  It seems we talk about the same things, and you are still depressed.  Can I get you professional help?  Can both of us go to couples therapy?  I am a spouse, not a therapist.”

A by Janet:  Charles and I did couples counseling and found it extremely helpful.