Brain Support Network hosted UCSF neurologist Adam Boxer, MD, PhD for a webinar on the latest research into progressive supranuclear palsy (PSP) and corticobasal syndrome (CBS). (CBS is also referred to as corticobasal degeneration, CBD.) Dr. Boxer discussed past clinical trials as well as research on tau biomarkers and tau imaging. He also gave an overview of research on the horizon for both PSP and CBS, and answered many audience questions during the one-hour event.
Category Archives: CBD
Save the Date – June 29, 2024, PSP/CBD Symposium, Hybrid
Plan to join Brain Support Network – either in-person on the Stanford campus or virtually – for a symposium for the progressive supranuclear palsy (PSP) and corticobasal degeneration (CBD) communities, on Saturday, June 29, 2024, 10am to 3pm PT. Co-hosted by Stanford. Everyone is welcome.
Top Three Things I Learned as a Caregiver (Recording, Discussion Summary, and Notes)
In December 2023, Brain Support Network and Stanford Parkinson’s Community Outreach co-hosted a discussion for caregivers to share the top three things they have learned about caregiving. Caregivers offered advice to each other, including advice caregivers wished they could tell their younger selves.
2024 PSP/CBD (those with diagnosis) Virtual Local Support Group Meeting Dates
Here’s information about the 2024 Brain Support Network virtual support group meetings for those with a PSP (progressive supranuclear palsy), CBD (corticobasal degeneration), or CBS (corticobasal syndrome) diagnosis who live in Northern or Central California.
We meet monthly, generally on the second Sunday, 2-2:30pm. The meetings are loosely facilitated by a local support group member with a CBS diagnosis. Continue reading
Local group member Camilla on corticobasal degeneration and palliative care
Local support group member Camilla recently spoke to the Palo Alto senior community where she lives about corticobasal degeneration (CBD) and palliative care. CBD is a very rare disorder. It is sometimes called an atypical parkinsonism disorder. Palliative care is little-understood field of medicine that focuses on comfort and the whole person. These are notes Camilla shared of her remarks.