Here’s information about the 2024 Brain Support Network LBD, PSP/CBD, and MSA caregiver-only support group meetings for those living in Northern or Central California.
Since 2004 (20 years!), we have convened local support group meetings for caregivers of those with Lewy body dementia (LBD), progressive supranuclear palsy (PSP), multiple system atrophy (MSA), corticobasal degeneration (CBD), and atypical parkinsonism.
Local support group member Camilla recently spoke to the Palo Alto senior community where she lives about corticobasal degeneration (CBD) and palliative care. CBD is a very rare disorder. It is sometimes called an atypical parkinsonism disorder. Palliative care is little-understood field of medicine that focuses on comfort and the whole person. These are notes Camilla shared of her remarks.
Brain Support Network (BSN) and Stanford’s Parkinson’s Community Outreach co-hosted a virtual meeting in late August 2023. Attendees were invited to share “gadgets” (equipment, tools) or “tricks” (techniques with every-day items) they find useful in caregiving for family members with Lewy body dementia, progressive supranuclear palsy, multiple system atrophy, corticobasal degeneration, and Parkinson’s Disease.
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Longtime Brain Support Network supporter, friend, and local support group member Helen Bundy Medsger will be speaking virtually at a Parkinson’s support group meeting, on Monday, June 5, 2:30pm. Her topic is “How to turn challenges into gifts – a care partner’s perspective.”
