“Caregiver Toolkit in Uncertain Times” (such as covid) – webinar notes

In late June, Presbyterian Senior Services (pssusa.org) in New York City hosted a webinar for caregivers on how to protect yourself and your loved one during this time of covid-19.

Presenters offered guidelines for questions to ask and procedures to follow to prevent transmission of covid-19 to you or your family:

  • if you have or need in-home care
  • live in an assisted living facility or are moving to assisted living
  • for home care services following hospital discharge, and
  • for venturing out as businesses open.

Presenters also provided:

  • Online covid-19 resources
  • A list of equipment needed to collect vital signs for telehealth visits
  • Go-Kit packing list with the basics you will need (and want) if you have to take your loved one to the hospital and they are admitted
  • In-home covid-19 test kit information

This webinar was recorded and can be viewed at:  https://www.youtube.com/watch?v=zcfJ8UaGsZs

Denise Dagan, with Stanford Parkinson’s Community Outreach, listened to the webinar and took notes.  See below.

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Caregiver Toolkit in Uncertain Times
Webinar hosted by Presbyterian Senior Services
June 25, 2020

Notes by Denise Dagan, Stanford Parkinson’s Community Outreach

Presenters: Melissa Sheehan and Laura Radensky, LCSW


Mind Set Preparation – Keeping Calm

Keep a mindset of being open to not knowing what is next

Accept continuing risks and take reasonable precautions

– Wearing masks
– Hand washing
– Limiting people coming into our home or ensuring those who come into the home have proper protective equipment.
– Limiting exposure
– Practicing self care (eating well and attending to health issues)
– Err on the side of caution as businesses reopen
– Realize information about covid-19 is an evolving body of knowledge
– Look at good data:  Center for Disease Control (cdc.gov), NY State Novel Coronavrius (coronavirus.health.ny.gov), and Johns Hopkins (coronavirus.jhu.edu), Institute for Health Metrics and Evaluation (healthdata.org)



Equipment Preparation at Home

* Ordering personal protective equipment including masks, gloves, hand sanitizer, thermometers.  Keep in mind soap and water are recommended over hand sanitizer.

* Higher level of equipment including face shields, gowns, scrubs, N95 and KN95 masks. This equipment should be used by hired care givers working in your home. Expect that N95 masks be reused due to shortages of equipment.

* Equipment to collect vital signs prior to telehealth visits, including:

– blood pressure cuff

– pulse oximeters.  Normal blood oxygenation is at least 95%.  In many cases, upon arrival at emergency rooms, covid patients’ blood oxygenation levels were in the 70s, 60s, even 50s. Doctors tell patients to visit the hospital if blood oxygenation drops to 93%, or below.

– scales

– thermometer. All staff working in your home taking temperature twice daily.  Everyone entering the home should have their temperature taken before entering.



Testing Options

Greater availability of testing options

Possibility now to request COVID-19 tests and antibody testing

Being able to have testing in your home and sent to lab
* LabCorp – Pixel at-home kit
* House calls:  doctor visits at home may do covid-19 testing

Accuracy issues and possibility to still be contagious:
* In light of this if you have been exposed or have symptoms, self isolate
* Be extra vigilant about wearing masks hand washing to protect yourself and others



Planning Ahead

Home care, assisted living are still options, but:

* Assisted living has limited visitation, social interaction, entertainment, etc.

* In addition, assisted living facilities are doing twice daily temperature checks, etc.

* There are far fewer covid-19 cases in assisted living facilities.  Most senior residential care facility covid cases have been in skilled nursing/nursing homes.

Live-in service and fewer caregivers with home care:

* Just like clients discontinued in-home care due to concerns of catching covid, on-home care workers stopped working as in-home care givers due to:

  • self isolating due to personal exposure
  • child care while schools are closed
  • personal concern over becoming infected or infecting others

* As businesses reopen more caregivers should become available.  Some services have changed policies to limit exposure to patients.

Advance Directives, especially the choice of a healthcare proxy since covid-19 is a fast moving disease process. Make sure your advance directive information is available so carers don’t have to go looking for it.

Online cultural options:  musueums, opera, music, concerts



The “New Normal”

Ensuring restaurants and other public spaces are accessible and safe

Having 60% (or higher) alcohol wipes available and proper spacing of tables

Preparing ahead to ensure safety



Providing Care to Those Who are Ill

Most home care agencies have N95 and KN95 masks that filter 94% of small particles to provide safe services to clients

Face shields, gowns, and other equipment also provided by agencies

Arranging for workers to stay home if have had contact of are symptomatic at least 14 days and then having testing.  Newest guideline requires two negative COVID tests at least 24 hours apart before returning to work

Some agencies particularly with LPN staff will provide care to active COVID clients

Sometimes, aide services were on hold for active COVID clients but skilled services are still provided (nursing, physical, occupational and speech therapies)



Provider Questions

How are staff being tested and monitored for cases?

– And are there any cases among residents and staff?

– Testing of staff and residents should happen weekly.

How is information on any cases being communicated to care partners?

– Testing results should be available to anyone who asks.

– Notification of all involved parties should be communicated (text, email) immediately.

What are the steps being taken to clean and sanitize?

– Should be a robust procedure for cleaning the facility.

– Should be regularly cleaning high touch areas.

– What are they cleaning with?

– Are there check lists for which areas and how often cleaning is done?

– Who’s doing the cleaning?

– How are staff being trained on procedures?  Recommend ongoing training on hand washing, sanitizing and procedures for social distancing.  Recommend three times weekly in service training on procedures for hand washing, using hand sanitizer, taking temperature at building entry, check list of all personnel entering the building to clear those without fever, exposure or symptoms.



Creating a Go-Kit with what you need in an emergency

  • Cell phone
  • Charger
  • Glasses / hearing aids
  • List of phone numbers
  • Copy of advance directives
  • List of medications (with dosages and times)
  • Copy of insurance ID cards
  • Small amount of cash or prepaid debit card
  • Book
  • Pajamas / underwear
  • Hairbrush
  • Toothbrush / toothpaste



Transitions to Home from Hospital – Resources to Manage

Medicare home care and changes in protocols for care under COVID-19

  • Skilled nursing care
  • Home care services
  • 30 days, but can be extended if need can be shown

What to expect when arranging for private home care

  • Some limitations in staff with multiple language skills
  • Maintaining a safe environment at home when visitors come in



Know before you go – the New Normal

Call ahead or look at the website of your destination.  Does the business have a policy posted online for keeping staff and patrons safe?

Are they conducting daily health checks of their employees?

Are high touch and public areas being regularly sanitized and cleaned?

Is social distancing being observed when possible?

If patrons are waiting, are guidelines marked for social distancing?

Are employees wearing face coverings when appropriate?

Is hand sanitizer readily available?

Are signs displayed about hand hygiene and stopping the virus?

Are employees enforcing masks, social distancing, and stopping unhygienic behaviors?

If everything looks like it did 6 months ago, ask questions!

“Strategies for managing feelings of loss and grief” (Elaine Book, MSW)

This wonderful list of strategies was compiled by Elaine Book, social worker with the Pacific Parkinson’s Research Centre in Vancouver, BC, Canada, in July 2020. This list was shared at a recent WellMed Charitable Foundation teleconference that featured Ms. Book, in conversation with Parkinson’s caregivers. (There is little about this list that is Parkinson’s-specific. Nor is it specific to caregiving.)

Ms. Book’s list includes this quotation:

“Grief is like the ocean; it comes on waves ebbing and flowing. Sometimes the water is calm, and sometimes it is overwhelming. All we can do is learn to swim.” (Vicki Harrison)

There are many good ideas here. The last one resonated with me:

Reframe the loss as a change, not an end to a relationship or ability or role. Notice what has changed and focus on what remains. It can be seen as the closing of one chapter and the opening of another.

Happy reading,
Robin


Strategies for managing feelings of loss and grief
by Elaine Book, MSW, RSW
Pacific Parkinson’s Research Centre, Vancouver, BC, Canada
July 2020


Keep a journal

  • Writing out thoughts and feelings is an effective way to look at what is happening. Writing about your insights and reflecting on them can be empowering, can help you to find fresh opportunities and move in a new direction.  Sometimes writing about your losses can help you gain some emotional distance, make it more manageable and less frightening. Feeling the pain is healthier in the long run than denying the fears, anger, sadness, loneliness or resentment.
  • If you are new to journaling, start with writing down a daily highlight or gratitude. Or use prompts like “What makes me angry or sad or scared” or “What have I learned about myself” or “I found it funny and endearing when the PWP …” or “The unexpected gift I received”. [PWP = person with Parkinson’s]

Establish goals for yourself

  • Facing losses can leave you feeling out of control…try to counteract that feeling by setting goals for yourself like learning a new skill or taking a course or volunteering. Set up a plan that can work, one that is reasonable and rewarding.

Take action to stay healthy

  • Eat well, exercise, laugh every day, take breaks, sleep, maintain spiritual connections, remain intellectually stimulated, socially connected, use stress management and relaxation techniques like breathing.

Mindfulness

  • Grounding practices like yoga, meditation or even walks in nature help to pace yourself.
  • Apps for mindfulness practice – www.headspace.com, 10%happier, Breathe

Surround yourself with those who feed you

  • Be with people whose presence energize you and stay away from those who drain you.  Create a “psychological family “…. the people you turn to in times of crisis and celebration. This circle of support can go beyond family.  The people who are there for you in good times and bad are the ones who will be able to understand the losses of the caregiving experience. They can provide a healing hug. Also recognize the formal resources and support systems that are available to help you if your psychological family needs expanding.

Work together

With your loved one, address and come to terms with the losses and changes in function. A condition can bring you closer for having a shared experience.

Create something new

  • New plans, new connections based on how your life is now. Look for ways to connect with the PWP as he/she is today. Seek out joy in your relationship with the PWP.  [PWP = person with Parkinson’s]

Reflection

  • Think about past challenges in your life and how you navigated through them. Then use those experiences to remind yourself of your courage and strength and possibly use some of the same strategies again. What was helpful and what was not. Trust in yourself that you have the ability to meet the present challenge.

Reframe

  • Reframe the loss as a change, not an end to a relationship or ability or role. Notice what has changed and focus on what remains. It can be seen as the closing of one chapter and the opening of another.

Caring.com’s List of the 8 Best Medical Alert Systems

Caring.com occasionally evaluates the best medical alert systems.  This summer, they took a look at eight systems and said that they were the “best.”  Here’s an excerpt from their blog post:

At a Glance: The 8 Best Medical Alert Systems

Bay Alarm Medical – Best for Customer Service
MobileHelp – Best for Those Without a Landline
Medical Guardian – Best for Premium Features
LifeFone – Best Standalone Mobile App
Life Alert – Best for Industry Experience
Medical Care Alert – Best for EMT/EMD Certified Monitoring
QMedic – Best for Two-Way Communication
RescueTouch – Best for Two-Way Communication

Our family used the Philips Lifeline, which has fallen off the Caring.com list the last couple of years.

You can see the full blog post here:

www.caring.com/best-medical-alert-systems/

Robin

CalHOPE offers a mental health call-line for Californians struggling with COVID-19

California HOPE (CalHOPE), a program run by the California Department of Health Care Services, delivers crisis support for communities impacted by a national disaster, such as the COVID-19 pandemic.  CalHOPE builds community resiliency and helps people recover from disasters through free outreach, crisis counseling, and support services.  For California residents, CalHOPE offers a call-line —  (833) 317-HOPE (4673) — to talk about your struggles and get emotional support from someone who has persevered through tough situations.