Two Pneumonia Vaccines Recommended by CDC

This post is of general interest to those over age 65 or those caring for someone over age 65.

The latest CDC recommendation to people age 65 and older is to get TWO separate pneumonia vaccines  — Prevnar 13 and Pneumovax 23.  This vaccine won’t prevent people from developing aspiration pneumonia.

Here’s a link to a recent Wall Street Journal article about the CDC’s recommendation:

online.wsj.com/articles/new-advice-for-vaccines-to-stave-off-pneumonia-1409604950

Health & Wellness
New Advice for Vaccines to Stave Off Pneumonia
Two separate vaccines are now being recommended
Wall Street Journal
Sept. 1, 2014 4:55 p.m. ET

Robin

100 Things That Must be Done by the Survivor

A couple of years ago, the incomparable Vera James, moderator of one of the online MSA-related support groups, posted a list of “87 Things That Must Be Done by the Survivor” upon the death of a spouse or loved one. Recently, Vera emailed me a list of “100 Things That Must be Done by the Survivor.”  Vera figured that the revision was done to make it a nicer-sounding number.

As suggested by the list-maker, it’s better if we all provide details about these 100 tasks well before we die so that our survivors will know what our wishes are and how to proceed.

I’ve copied the full list below.

Robin


 

100 Things That Must Be Done By the Survivor
Prepared In Every Way (preparedineveryway/blog)
2012

Many of these details can be planned ahead of time. By making these important decisions now, you can minimize the emotional strain that will be placed on your survivors.

Secure Vital Statistics: (required for burial permit)
1.  Name, address and phone number
2.  How long in state
3.  Name of business, address and phone
4.  Occupation and title
5.  Social Security number
6.  War Veterans Serial Number
7.  Date of birth
8.  Place of birth
9.  US Citizen
10.  Father’s name
11.  Father’s birthplace
12.  Mother’s maiden name
13.  Mother’s birthplace
14.  Religions name (if any)

Pay some or all of the following:
1.  Family burial estate
2.  Memorials
3.  Funeral director
4.  Interment Service
5.  Clergy
6.  Florist
7.  Clothing
8.  Transportation
9.  Telephone and telegraph
10.  Food
11.  Doctors
12.  Nurses
13.  Hospitals and ambulance
14.  Medicine and drugs
15.  Other current and urgent bills (mortgage or rent, taxes, installment payments)

Collect Documents (required to establish rights for insurance, pensions, social security, ownership, relationship, etc.):
1.  Will
2.  Legal proof of age or birth certificate
3.  Social Security card or number
4.  Marriage license
5.  Citizenship papers
6.  Insurance policies (life, health and accident, property)
7.  Bank books and credit cards
8.  Deeds to property
9.  Bill of sale of car
10.  Income tax returns, receipts or cancelled checks
11.  Veterans discharge certificate
12.  Disability claims
13.  Memorial park certificate of ownership

Decide and Arrange Within a Few Hours:
1.  Burial estate location and space
2.  Memorial type inscription
3.  Casket type
4.  Clothing for deceased
5.  Vault or sectional crypt
6.  Type of service (religious, military, fraternal)
7.  Special selection from scriptures
8.  Clergy to officiate
9.  Name of funeral director
10.  Place where service is to be held
11.  Time for funeral service
12.  Name of charitable organization to which donations are suggested in memory of deceased
13.  Providing information for eulogy
14.  Select names for pallbearers
15.  Music
16.  Clothing for you and children
17.  Preparation at home, including food for family and guests
18.  Extra chairs
19.  Transportation for family and guests, including planning funeral car list
20.  Checking and signing necessary papers for burial permit
21.  Providing vital statistics about deceased to newspapers.
22.  Providing addresses and telephone numbers for all interested people
23.  Answering innumerable sympathetic phone calls, messages, wires and letters
24.  Meeting and talking with funeral director, cemetery representative clergy, about all details.
25.  Greeting all friends and relatives who call
26.  Arranging for meeting relatives who call
27.  Arranging for meeting relatives who arrive from out of state at airport or railroad/bus station
28.  Providing lodging for out-of-town relatives
29.  Arranging for special religious services
30.  Check the Will regarding special wishes
31.  Order death certificate (multiple copies)
32.  Look after minor children

Notify as soon as possible:
1.  The doctor or doctors
2.  The funeral director
3.  The memorial park
4.  All relatives
5.  All friends (email?)
6.  Employer of deceased
7.  Employers of relatives not going to work
8.  Casket bearers
9.  Insurance agents (life, health and accident)
10.  Religious, fraternal, civic, veterans organizations, unions
11.  Newspapers regarding notices
12.  Attorney, accountant, or executor of estate

Additional Advice
:
1.  Business online – user names, passwords
2.  Banking online – user names, passwords
3.  Friends online – email, passwords
4.  Distribution of personal property
5.  Advise who they can trust to advise in their absence
6.  Tell about loans receivable/bartering
7.  Know where stock certificates are located
8.  Locate “free” insurance policies from banks, credit cards, AAA
9.  Complete an Advance Directive, Do Not Resuscitate
10.  Who has access to Safe Deposit? Where are keys?
11.  PINs for bank and other accounts
12.  Record information in something portable
13.  Discuss directions with your family
14.  Review this list regularly

 

Three Good Lists of Things to Do When a Loved One Dies

Unfortunately our local support group has experienced several deaths in the last few weeks.  One of the caregivers asked if I had a list of things that needed to be done after a loved one dies.

Actually, we’ve collected three good lists over the years.

#1 – My favorite is this list of:

“100 Things That Must Be Done by the Survivor”
Prepared In Every Way
2012

This is no longer available on the PreparedInEveryWay.com blog, so we’ve posted it to the Brain Support Network website.

When I originally got the list from Vera James, moderator of one of the online MSA support groups, it had 87 things on the list.  I guess the authors eventually found 13 more things to add!

#2 – And this is a list of 42 things from Help for Seniors (help4srs.org), plus a second page about safe deposit boxes in California:

Death Checklist
Help for Seniors
2010

#3 – Finally, there’s a booklet from TIAA-CREF, the insurance company, that breaks things down into items to do right now, in the first month, in the first few months, in months 3-6, by month 9, and in the future.

The booklet also has a short checklist on page 19 (page 21 of the PDF).

Checklist – After Loved One Dies
TIAA-CREF

Robin

Webinar on CA’s Revised POLST Form (going into effect on 10-1-14)

POLST stands for Physician Orders for Life-Sustaining Treatments.  You might know it as the “pink form.”  Everyone with a neurological condition should complete a POLST with their physician and healthcare agent.  Anyone who is frail should also complete a POLST as should anyone with a serious medical condition.

California has revised the POLST form.  The previous form was distributed in 2011.  The 2014 form goes into effect on 10-1-14.  The 2011 form is still valid, even after 10-1-14.  And the 2014 form shouldn’t be used until 10-1-14.

There’s a free one-hour webinar being hosted by the Coalition for Compassionate Care of California (CCCC – coalitionccc.org/) at noon on Wednesday 9-10-14.  You can register here:

www.eventbrite.com/e/introduction-to-the-2014-polst-form-tickets-12153562633?ref=ebtnebregn

On this webpage, you can find a link to the 2014 POLST form along with an FAQ on the differences between the 2011 and 2014 forms:

capolst.org/2014polst/

Robin

 

Getting the low-down on nursing homes (in California especially)

This post may be of interest to those who may have to place their family members in a nursing home, or those who may have to move to a nursing home themselves.

In last Monday’s New York Times, there was a very long but important article about how nursing homes game the Medicare rating system, “Nursing Home Compare”medicare.gov/nursinghomecompare

You can find the article here:

www.nytimes.com/2014/08/25/business/medicare-star-ratings-allow-nursing-homes-to-game-the-system.html

The key criticism discussed is that Medicare ratings are:

“based in large part on self-reported data by the nursing homes that the government does not verify.  Only one of the three criteria [health inspections] used to determine the star ratings…relies on assessments from independent reviewers.  The other measures — staff levels and quality statistics — are reported by the nursing homes and accepted by Medicare, with limited exceptions, at face value.”

A second criticism is that the ratings:

“do not take into account entire sets of potentially negative information, including fines and other enforcement actions by state, rather than federal, authorities.”

The authors argue that Medicare’s five-star ranking misleads consumers, who place their family members in these facilities.

The example given is Rosewood Post-Acute Rehab, a nursing home in Carmichael, near Sacramento.  For the last five years, this nursing home has a five-star ranking, the highest possible with Medicare.  Last year, the state of California fined Rosewood $100K — the highest possible fine — “for causing the 2006 death of a woman who was given an overdose of a powerful blood thinner.”

“From 2009 to 2013, California fielded 102 consumer complaints…at Rosewood, according to a state website.  California Advocates for Nursing Home Reform, which also tracks complaints, put the number even higher, at 164, which it says is twice the state average.”

But none of the state data (hfcis.cdph.ca.gov/default.aspx) or CANHR data (canhr.org) is included on Medicare’s “Nursing Home Compare.”

Also, Rosewood got an average three-star rating on the health inspections.  They are able to get a five-star overall rating by self-reporting five stars on staffing and quality measures.  We are told that lots of nursing homes hire staff just before they have to report on staffing, and then lay the staff off once the staffing level has been reported.

Medi-Cal, California’s version of Medicaid, also gathers staffing levels of nursing homes in the state.  The authors discovered that “statewide, California nursing homes reported [staffing] levels to Medicare that were 15 percent higher than what they reported to Medi-Cal.”

The state data reflects staffing the whole year while the Medicare data reflects staffing only around the time of the annual report.

In the last several years, Rosewood has been the subject of a dozen lawsuits.  An eight-minute video on the NY Times website features the sad story of Essy Chandler and Rosewood.  The Chandler family is suing Rosewood because Mrs. Chandler died after falling several times at the nursing home.

The video is a good way to get the gist of the article.  Note that the article breezes over the Chandler lawsuit at the very end while the video features the Chandler family.

A link to the video is here:
www.nytimes.com/video/business/100000003071742/five-star-nursing-homes.html

The bottom line is that families should NOT rely on Medicare’s rating system for information about the quality of care provided at a nursing home.  Other information about nursing homes (in California) is available from:

  1. California Department of Public Health
    hfcis.cdph.ca.gov/default.aspx
  2. California Advocates for Nursing Home Reform (CANHR)
    canhr.org
  3. long-term care ombuds
    list by county in California –  aging.ca.gov/programs/ltcop/Contacts/
  4. families of current residents
  5. support groups
    At any given time, there is typically one support group member who has a loved one in a nursing home, whether it be for rehab or long-term care.

Let me know if you have other thoughts for how families can obtain reliable information about the quality of care at a particular nursing home.

Robin