“The Heartbreak and Hazards of Alzheimer’s Caregiving”

“Scientific American” published an article about Alzheimer’s caregiving. Despite the title, I think the article applies to caregiving of anyone with a neurological disorder and perhaps all caregiving! Here are some excerpts.

Excerpt: 

The vast majority of caregivers know full well that their spouses or parents are ill, yet they still behave in ways they know are counterproductive: arguing, blaming, insisting on reality, and taking symptoms personally. Yes, Cathy understood that she was dealing with a disease, with someone suffering from delusions and hallucinations, but when Frank [with Alzheimer’s], panicked by imaginary thieves, refused to crack open a window, Cathy [his wife] fumed with resentment, and that feeling gradually overcame her desire to be understanding and reasonable. … [Frank] lost his ability to see his wife as a complete person.

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Caregiver’s Advice – “20 Lessons Learned the Hard Way”

A local Parkinson’s Disease (PD) caregiver support group member recently offered her highest recommendation for a book titled “Advice From a Parkinson’s Wife: 20 Lessons Learned the Hard Way,” by Barbara Sheklin Davis (2019). We encourage you to buy it! Barbara authored five books before this one. She was a Parkinson’s care partner for over twenty years. Her latest book is “Advice from a Parkinson’s Widow.”

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“Advice From a Parkinson’s Wife: 20 Lessons…” (book review)

Our friend Denise Dagan shared her book review of “Advice From a Parkinson’s Wife: 20 Lessons Learned the Hard Way,” by Barbara Sheklin Davis (2019).  Though “Parkinson’s” is in the title, this book will be of interest to caregivers coping with Lewy body dementia and the other atypical parkinsonism disorders.  While “wife” is in the title, this book will be of interest to all caregivers regardless of whether they are caring for a spouse or not.  Denise highly recommends the book and calls is a “quick read” (at 94 pages).  Her comments are shared here, and then Denise provides a summary of the 20 lessons.

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Top Three Things I Learned as a Caregiver (Recording, Discussion Summary, and Notes)

In December 2023, Brain Support Network and Stanford Parkinson’s Community Outreach co-hosted a discussion for caregivers to share the top three things they have learned about caregiving. Caregivers offered advice to each other, including advice caregivers wished they could tell their younger selves.

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