A local Parkinson’s Disease (PD) caregiver support group member recently offered her highest recommendation for a book titled “Advice From a Parkinson’s Wife: 20 Lessons Learned the Hard Way,” by Barbara Sheklin Davis (2019). We encourage you to buy it! Barbara authored five books before this one. She was a Parkinson’s care partner for over twenty years. Her latest book is “Advice from a Parkinson’s Widow.”
“Advice From a Parkinson’s Wife: 20 Lessons…” (book review)
Our friend Denise Dagan shared her book review of “Advice From a Parkinson’s Wife: 20 Lessons Learned the Hard Way,” by Barbara Sheklin Davis (2019). Though “Parkinson’s” is in the title, this book will be of interest to caregivers coping with Lewy body dementia and the other atypical parkinsonism disorders. While “wife” is in the title, this book will be of interest to all caregivers regardless of whether they are caring for a spouse or not. Denise highly recommends the book and calls is a “quick read” (at 94 pages). Her comments are shared here, and then Denise provides a summary of the 20 lessons.
Seminario web sobre la demencia con cuerpos de Lewy – grabación y presentación
El 28 de febrero de 2024, Brain Support Network y Stanford Neurology organizaron un seminario web en español sobre la demencia por la enfermedad de Parkinson y por demencia con cuerpos de Lewy (DCL).
Local support group member’s advice on items to have in place
Local support group member Joan’s husband recently passed away with Lewy body dementia. This is a list of items she encourages families to consider before a loved one’s passing. Some of the advice is specific to spouses. A bit of the advice is California-specific. None of the advice is specific to Lewy body dementia.
Exploring the Environmental Link to Multiple System Atrophy: A UCLA Study
Past research conducted in California has linked environmental factors to an increased risk of neurological diseases. However, the mystery deepens with Multiple System Atrophy, where few studies have investigated its risk factors. At UCLA, a study is underway aiming to understand different factors in the environment that may contribute to the development of MSA.