This 7-minute video, by Rehealthify, offers a quick overview of progressive supranuclear palsy (PSP).
MSA Symposium (May 4, 2024) – Recordings, Slides, Notes
Brain Support Network and Stanford Movement Disorders Center co-hosted a Multiple System Atrophy Symposium on May 4, 2024.
Congresswoman battling PSP delivers House speech using a text-to-voice app
On Monday, May 6, Rep. Jennifer Wexton (D-Va.) used a text-to-voice application to “speak.” In 2023, she was diagnosed with progressive supranuclear palsy (PSP). Continue reading
Five Tips from Jon and His Father
We saw these “five tips” on an online community for those coping with Multiple System Atrophy (MSA). The tips are about staying active, resting, scheduling activities with intent, staying positive, and having the caregiver research “all the bad things that can happen” so that the person with a diagnosis can focus on positive things. These tips may be of interest to everyone with an atypical parkinsonism disorder. The author is Jon, writing on behalf of his father, diagnosed with MSA in 2023. They kindly gave permission to share.
“Tips and Tricks” from Susan
We saw these “tips and tricks” on an online community for those coping with Multiple System Atrophy (MSA). The tips are about sitting down, using plastic bowls and a cookie sheet, using a lanyard, toileting, prism glasses, leak-proof underwear, and more. These tips may be of interest to everyone with an atypical parkinsonism disorder. The author is Susan, who has an MSA-C diagnosis. She kindly gave permission to share. At the end, she shares this message: “I often am asked how I stay so positive, and my response is always ‘It’s one thing I can control’.”