The most recent issue of “Expert Review of Neurotherapeutics” includes a review article on the treatment of hallucinations in Parkinson’s disease. Of course this applies to Lewy body dementia as well. Continue reading
Recommended lifestyle changes in those with orthostatic intolerance
We saw this interesting graphic — and list of ten tips — in a blog post about orthostatic intolerance. The blog post addresses dysautonomia and POTS (postural orthostatic tachycardia syndrome). Some (not all!) of the ten tips apply to those dealing with multiple system atrophy and Lewy body dementia.
“Purposeless groaning” in neurological disorders
I had a small chuckle at this article on a single case of “purposeless groaning” in Parkinson’s disease (PD):
OFF-Period Purposeless Groaning in Parkinsonism
Neurol India
2022 May-Jun; 70(3):1232-1234.
Vikash Agarwal, et al
BSN Supporting Parkinson’s Research Plus Lyme Disease Research
In October 2021, we helped a gentleman with Parkinson’s disease (PD) make arrangements for his brain donation plus donation of his cerebral spinal fluid (CSF) to Lyme disease researchers. The gentleman had several positive tests for Lyme borreliosis. He decided this was the best approach in terms of donating — brain for PD research and to confirm the diagnosis, and CSF for supporting Lyme disease research. He and his family knew that the Lyme disease diagnosis would not be confirmed but this was of no concern to them since he had several positive tests for Lyme borreliosis already But he was hoping that his CSF could aid researchers.
High burden on those with PSP and their caregivers, regardless of type
This international study (US and five European countries) found that there is a high burden of progressive supranuclear palsy on patients, caregivers, and healthcare systems, regardless of PSP phenotype.