Friend of Brain Support Network Rachael, who co-founded the “Remember Me” FTD blog and podcast, wrote about her decision to donate her father’s brain and working with Brain Support Network to accomplish that.
When Cynthia Dearborn became her 75-year-old father’s caregiver, she knew little about what lay ahead. Two decades on, she shares the insights that helped her help him Continue reading
Our friends at the Lewy Body Dementia Association (LBDA) are conducting a webinar soon:
Effectively Managing Medical Appointments for Lewy Body Dementia
June 22, 11am PT
Host: Lewy Body Dementia Association
Longtime Brain Support Network supporter, friend, and local support group member Helen Bundy Medsger will be speaking virtually at a Parkinson’s support group meeting, on Monday, June 5, 2:30pm. Her topic is “How to turn challenges into gifts – a care partner’s perspective.”
People with parkinsonism have a much higher risk of hip and other fractures. Our friends at UCSF’s Movement Disorders Center and other US clinics are recruiting for the TOPAZ (Trial of Parkinson’s and Zoledronic Acid) study.
Researchers will test if zoledronate, an FDA-approved medication for osteoporosis (thinning of the bone), can prevent fractures in people with parkinsonism, whether or not they have osteoporosis. Using zoledronate for this purpose is investigational.
Enroll today! Participate in the TOPAZ study remotely, from the comfort of your home. You could receive $100 upon enrollment and $50 per year during the study.
To be eligible, individuals must be at least 60 years of age with NO prior hip fracture, AND have been diagnosed with any of the following conditions:
To learn more or to enroll, visit the study website TOPAZstudy.org. If you have questions, email [email protected], or call 415-317-5748.
