In December 2016, Sylvia Rupani-Smith posted a story to the website Medium (medium.com) about her mom having a “terrible disease,” progressive supranuclear palsy (PSP). In the article, Sylvia reveals that her mother has a tracheostomy tube; she is perhaps attached to a ventilator. The story is copied below.
medium.com/@sylviarupanismith/a-mothers-strength-9f36240a7bb1#.q3g0pr8t5
A Mother’s Strength
by Sylvia Rupani-Smith
Medium.com
Dec 9, 2016
The author’s name may be familiar to some of you. In October 2016, Sylvia wrote an article in the New York Times about her mother’s journey with PSP. Here’s our post on that article:
www.brainsupportnetwork.org/psp-story-falls-were-bad-diagnosis-worse/
Robin