The FTD Support Forum (ftdsupportforum.com) is an online support group for those dealing with frontotemporal degeneration, including progressive supranuclear palsy (PSP) and corticobasal syndrome (CBS). One of the moderators, Lea H, compiled a list of books on dementia recommended by group members. The list is copied below (with Lea’s permission). I’ve also provided the link on the off-chance that anyone is a member.
Robin
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www.ftdsupportforum.com/threads/list-of-books.28339/
Post on FTD Support Forum
by: Lea H
October 6, 2015 (updated many times)
I compiled a list of books that have been mentioned by members on the forum. I could have missed some of them, but here is my alpha list:
BOOKS about DEMENTIA
A Curious Kind of Widow, by Ann Davidson
Alzheimer’s, A Love Story One Year in My Husband’s Journey, by Ann Davidson
Ambiguous Loss, by Pauline Boss
Contented Dementia, by Oliver James
Dementia Care at a Glance, by Catharine Jenkins, Laura Ginesi, Bernie Keenan
Dueling With Dementia, Not The Love Story We Planned, by Kate Fritz Leonard
Hard Choices For Loving People, by Hank Dunn
I Remember When, by Tracy Mobley (children’s book)
Life in the Balance, by Thomas Graboys, M.D.
Losing Louann, by Clinton Erb
Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey, by Deborah Shouse
Love, Laughter and Mayhem, by Cindy Keith, RN
Loving someone who has Dementia, by Pauline Boss
Measures of the Heart, by Mary Ellen Geist
Moving to the Center of the Bed: The Artful Creation of a Life Alone, by Sheila Weinstein
No Act of Love is Ever Wasted: The Spirituality of Caring for Persons with Dementia, by Jane Marie Thibault and Richard L. Morgan
Passages in Caregiving, by Gail Sheehy
Still Alice, by Lisa Genova
Suffering in Slow Motion, by Richard and Pamela Kennedy
Sweet Surrender: Awakening to the Riches of Dementia, by Holly Eburne
Ten Thousand Joys & Ten Thousand Sorrows: A Couple’s Journey Through Alzheimer’s, by Olivia Ames Hoblitzelle
The Art of Dementia Care, by Daniel Kuhn and Jane Verity
The Banana Lady and Other Stories of Curious Behavior and Speech, by Andrew Kertesz
The Other Dementia, by Katherine Nichols
The Selfish Pig’s Guide to Caregiving, by Hugh Marriott
The 36-hour day: a family guide to caring for people with Alzheimer disease, other dementias, and memory loss in later life, by Nancy L. Mace, Peter V. Rabins
What if it’s not Alzheimer’s : a caregiver’s guide to dementia, edited by Lisa Radin and Gary Radin
Where’s My Shoes? by Brenda Avadian
Young Hope’s Hand Guide to Dementia, by Tracy Mobley
Young Hope the Broken Road, by Tracy Mobley
Your Turn, by Laura S. Brown, PhD