I stumbled across this 6-minute video today:
“Living with PSP: Norma’s Story”
July 17, 2009
www.youtube.com/watch?v=6w-aL9_iQbI
It features Norma (with PSP), her husband Joe, and her daughter Susan.
The daughter’s advice:
- communicate with the neurologist
- find a local support group
- lay the groundwork now for help and community resources
Norma’s advice:
- be active
The husband’s advice:
- take life as it comes, but with humor
Perhaps those dealing with a recent diagnosis of PSP would get something out of this video, or perhaps any PSP patient would value seeing that they are not alone.
I don’t know why but this video is titled “Physical therapy: Turn and sit” and is supposed to feature physical therapist Heather Cianci. (It’s listed this way on the CurePSP website and on YouTube.) “Norma’s Story” has nothing to do with PT. I believe this video was posted to YouTube by CurePSP.
Robin