While this post and infographic are from the PSP Association (pspassociation.org.uk), the tips about managing caregiver stress apply to all caregivers. As the PSP Association (PSPA) is based in the UK, some of the terminology used is unique to the UK! (Example – in the US, we use the term “caregivers,” while “carers” is used in the UK.)
From the PSP Association:
Caring for someone can be rewarding as well as tiring, putting a lot of demand on your physical and emotional energy.
We came across a short book review about “Hard Days: My Life with a Neurodegenerative Disease,” by Dr. Branko Lugovic. Dr. Lugovic, a scientist, has progressive supranuclear palsy (PSP). Looks like worthwhile reading.As we age, it’s normal to lose some neurons in the brain. People living with dementia, however, experience far greater loss. Many neurons stop working, lose connections with other brain cells, and eventually die. At first, symptoms can be mild, but they get worse over time.
Review this infographic to learn more about four different types of dementia.
We recently became acquainted with a woman named Sherry who has a diagnosis of Lewy body dementia. We received her permission to share this plea of hers about considering the experience and emotions of someone with dementia.
Robin
Our friend Denise Dagan shared her book review of “Love, Dignity & Parkinson’s: from Care Partner to Caregiver,” by Terri Pease, PhD. Though “Parkinson’s” is in the title, this book will be of interest to spouse caregivers coping with Lewy body dementia and the other atypical parkinsonism disorders. It is directed at spouse caregivers. Denise highly recommends the book. Her brief summary is below.
