Since 2019, we have convened occasional support group meetings for those with progressive supranuclear palsy (PSP) and corticobasal degeneration (CBD). Pre-pandemic, these were held at a restaurant in San Mateo. Since the covid-19 pandemic, these meetings are virtual only.
We welcome those with PSP or CBD who are living in Northern or Central California. Attendance is usually two to six people. Most join by video but a few join by phone only. Contact us if you’d like to be added to the meeting reminder email list. When you contact us, please clarify if the email address is that of a person with PSP, CBD, or a caregiver.
These two groups — PSP and CBD — meet together as there is a large overlap of symptoms with these two disorders.
While a staff member from Brain Support Network sends out reminders about these meetings and may occasionally log in at the very beginning to see who is there, these meetings are ONLY for those with a PSP or CBD diagnosis. The discussion is self-led.
In 2023, these virtual meetings will be held on these dates, from 2pm to 3pm:
January 8, 5-6:30pm, virtual
March 12, 5-7pm, virtual
May 21, 5-6:30pm, virtual (this is the THIRD Sunday)
July 9, 5-6:30pm, virtual
September 10, 5-6:30pm, virtual
November 12, 5-6:30pm, virtual
In selecting these dates, we have avoided as many cultural events, sporting events, and holidays as possible.
Contact us for the virtual meeting link.
Please put these PSP/CBD support group meeting dates on your 2023 calendars now. An email requesting RSVPs will be sent out a week or so before each meeting. While RSVPs are not required, it is helpful if RSVPs are given by noon on the Saturday (one day) before each meeting. That way we can know who might be attending.