“Failure to Improve Is Still Being Used, Wrongly, to Deny Medicare Coverage”

This post may be of interest to those on Medicare.

This New York Times article is about the fact that skilled nursing facilities, home health agencies, and outpatient therapists deny continued therapy or treatment for Medicare beneficiaries with the rationale that the patients are “not improving” or “have reached a plateau.”

This issue was supposedly settled in a 2013 lawsuit.  According to the settlement, Medicare must cover skilled care and therapy when they are “necessary to maintain the patient’s current condition or prevent or slow further deterioration.”  The judge required CMS (Centers for Medicare and Medicaid Services) change its policy manuals and “begin an educational campaign to publicize the change.”

According to the article:  “By early this year, however, the Center for Medicare Advocacy [one of the plaintiffs in the 2013 case] was hearing from many sources that despite the settlement, providers and the contractors reviewing Medicare claims were still denying coverage when beneficiaries didn’t demonstrate improvement.”

So the plaintiffs in the 2013 case went back to court.  The judge has given CMS until early October to come up with a plan as to how it with launch an educational campaign.

As the article points out, there is an appeals process if Medicare denies therapy or skilled care but most patients don’t appeal.  The authors notes:

“Of course, patients and families have the same right to appeal coverage denials that they’ve always had. (A notice to this effect is buried somewhere in the paperwork they sign.) They also have the same odds of prevailing they’ve always had: very low, said Judith Stein, the executive director of the Center for Medicare Advocacy.  Patients generally have 72 hours to appeal, a process that involves seeking a ‘redetermination’ and then, if that fails, a ‘reconsideration.’ If families go all the way to a hearing before an administrative law judge, Ms. Stein said, they have a good shot. But most families don’t persevere, in part because they can’t afford to pay for care while the appeal proceeds. (If they do spend their own money, though, they can appeal for reimbursement.)”

Here’s a link to the full article:

www.nytimes.com/2016/09/13/health/medicare-coverage-denial-improvement.html

The New Old Age
Failure to Improve Is Still Being Used, Wrongly, to Deny Medicare Coverage
The New York Times
Paula Span
September 12, 2016

Robin

Caregivers – guilt, 11 tips for looking after yourself, etc.

This is a very long fact sheet from the Alzheimer’s Society in the UK on how caregivers (called “carers” in the UK) can take care of themselves.  Though this is published with Alzheimer’s or dementia caregivers in mind, I don’t think any of the tips and advice are specific to dementia caregiving.

One highlight from the fact sheet is the list of reasons a caregiver might feel guilty:

–  feeling that you are not living up to your own or other people’s expectations
–  feeling guilty about how you feel at times – eg angry or frustrated with the person you care for
–  feeling that you’re not coping as well as others, or that you should be ‘doing better’
–  feeling that you’ve had enough of your role as carer
–  feeling resentful about the impact caring has on your life and that you never ‘chose to do it’
–  not having been more patient with the person when their symptoms were developing
– taking time for your own needs or being on your own
– having to make difficult decisions, such as moving the person with dementia into a care home.

Another highlight are these 11 caregiver tips:

1- Know your limits – It is important to remember that you are only one person and there is only so much that you can do. Try to focus on what you can do and accept the things that you can’t.

2- Prioritise

3- Don’t compare yourself

4- Confront your feeling – [Accept] any negative feelings that you have. You are not alone in feeling this way – it is a normal reaction. Having negative feelings does not mean you are a bad person, and being aware of your feelings may make it easier to deal with them and move on.

5- Talk about things – Talking is often the first step to dealing with your emotions. It may seem like a small thing, but it can make you feel less isolated and stressed, and it can help to put things in perspective. If you feel that you’re really struggling, speak to someone as soon as possible.

6- Talk to other carers

7- Involve family and friends – You may find involving family and friends helps to give you a break and reduce some of your stress.

8- Ask for help

9- Think positively – Pick out and focus on some of the positive aspects of caring and supporting someone, such as your commitment to the person you care for, and your fondness for them. Think about your relationship with them and the fact you are there for them and are helping them enormously.

10- Focus on the good things – Sometimes it can be hard to see the positive things that you are achieving in your caring role. Writing things down – even small things, such as a shared joke – might be useful. When you are having a difficult day, these things can remind you of the good you are doing and that there will be better times.

11- Take a break

Here’s a link to the article:

www.alzheimers.org.uk/site/scripts/documents_info.php?documentID=119

Carers: looking after yourself
Alzheimer’s Society (UK)
Last reviewed April 2016

Robin

8 Tips to Ask for the Caregiving Help You Need

Debbie, a caregiver in our local support group, recently told me about the website, NextAvenue, which covers caregiving issues.  Here’s a recent article on “8 Tips to Ask for the Caregiving Help You Need.”

In short, the eight tips are:

1. Define your needs.
2. Brainstorm possible solutions with friends and family.
3. Build your support network.
4. Match talents to needs.
5. Keep a list of how others can assist you.
6. Be specific.
7. Manage the assistance.
8. Say thanks.

The article’s authors mention a book titled Mayday! Asking for Help in Times of Need, by M. Nora Klaver.  According to the article, Ms. Klaver says:

“There are several reasons why people wait until they are desperate to seek assistance. People are uncomfortable and afraid to ask. Also, we value our independence and no one may have taught us how to ask for help. She says that we don’t recognize we have a need until we are in a crisis. Often, we are unclear about exactly what we need, or we ask the wrong person to help fulfill our request.”

It seems to me that one problem is that “defining exactly what help is needed” may require knowledge or time for analysis that stressed-out caregivers don’t have.  But, obviously, it’s the right place to start when asking for help.

The article is short and worth reading.

www.nextavenue.org/8-tips-on-asking-for-the-help-you-need/

8 Tips to Ask for the Caregiving Help You Need
It starts with acknowledging that you can’t do it all on your own
NextAvenue
By Barbara and Jim Twardowski
September 2, 2016

Robin

Caregiver grief, anger, and guilt

Lately, quite a few caregivers have emailed me privately about caregiver anger (some call it “rage”).  Social worker friend Susan Weisberg points out that anger is a stage of grief.  She notes that another social worker calls the job “care-grieving” rather than “care-giving.”

Whenever I see an article on caregiver anger or caregiver grief, I like to share it widely.  It’s really important to recognize that these are normal emotions that caregivers have!

I ran across an article today on the Alzheimer’s Association website.  The article is NOT AD-specific but applies to caregivers for all disorders.

www.alz.org/documents/national/topicsheet_griefmournguilt.pdf

Caregiver grief, mourning and guilt
Alzheimer’s Association
April 2015

Check it out!

Robin

 

Article on woman with ALS using California’s End of Life Options Act

Since the time the California legislature discussed the End of Life Options Act in 2015, the topic of planning end of life via medication occasionally comes up at local caregiver support group meetings.  The new law went into effect in early June 2016.

One big change is that many hospice agencies now support the End of Life Options Act and their physicians will work within the law’s requirements.

When end of life is planned, the person dying often requests that friends and family gather beforehand.  There was an interesting article published recently on Vox about a California woman with ALS who planned her death and had a “party” prior to that.

Here’s a link to the article:

www.vox.com/2016/8/22/12552940/assisted-suicide-california

I arrived at my friend’s party. A few hours later she died, exactly as planned.
Updated by Kestrin Pantera
Vox
Aug 22, 2016, 8:10a

Robin